Meet Lily, she recently shared her cystic fibrosis journey with us. She is just 33 years old. She admitted how tough it was to be living through a pandemic while battling Cystic Fibrosis. Despite that 2020 was not a good year, it was her first time again to breathe deeply after she was able to take a new medicine for CF.
This is how Lily appreciates her every breathe: "When you have CF, you can never take breath for granted 🥰"
The lung plushie is not actually for her but for her friend’s 3 year old son, Hardy. She said: "As his Auntie Lily I want to be able to teach him how much his parents, and all they have done for cystic fibrosis fundraising, awareness, advocacy, and morale is the reason I’ll live long enough to watch him grow up. Thank you for the adorable tool to do this!"
Lily would like to share also the hardship of @cfgetloud. They are leading the charge to get this medicine (Trikafta) approved in Canada so we can all take a deep breath! ♥️